A couple of weeks ago I got a message from Rachel who had been in contact with another CDH1 patient going in for her total gastrectomy at Stanford. While it sucks to have such a rare condition, it makes the HDGC community very unique and tight knit. This past Monday I got a chance to … Continue reading 6 months, New Friends and a Triathlon in 2 Weeks
I Still Have a Torso
One of our amazing middle school students this past Wednesday gave me a hug, but thought removing my stomach would leave me without a torso. This is hilarious, but I definitely see the confusion. We often refer to and think of our torso's as our stomachs rather than the organ itself. The two most common comments as I've … Continue reading I Still Have a Torso
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Beef Aggressive
On Friday I had my two week follow-up appointment with my surgeon who said that I'm recovering really well and I even made the guy laugh! He's a little concerned about my weight loss, but more on that in a little bit. Dr. Norton did tell us that out of all the patients who had … Continue reading Beef Aggressive
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Changing the Story
A couple days ago Kate and I were going for a walk which has become a beautiful regimen in the Dang household. I have to walk at least three times a day to keep my bowels moving. When we walk, we walk incredibly slowly taking in and talking about life. The other day we were … Continue reading Changing the Story
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Today, I’m wearing Purple
It's official. Today, I'm a cancer survivor. We got the pathology results from my stomach. Now remember, after getting negative results from all pre-screening tests, this is what they found: At least 6 different areas of the stomach that already had cancer growing and a few areas that had pre-cancer cells starting to grow . … Continue reading Today, I’m wearing Purple
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Union Jack for Endoscopies and the Farewell Stomach Tour
I've been getting endoscopies every single year since I was about 12 years old, and without a stomach, this might very well have been the last endoscopy I'll ever need. As I am now apart of the research studying this cancer gene and prophylactic (preventative) gastrectomies (surgically removing the stomach), I'm now going through the … Continue reading Union Jack for Endoscopies and the Farewell Stomach Tour
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Gut checks, the Good News about My Health and FAQ’s
Let me start this blog post with a couple reassurances to put your hearts at ease: 1. I'm not dying. 2. I'm not leaving my position. I do, however, have some things that have been going on in my life that I wanted to catch people up on. While it seems a little impersonal, I … Continue reading Gut checks, the Good News about My Health and FAQ’s
Steve Dang 