This video is courtesy of Jessica Sasser who recorded my talk at the Night of Healing for patients at the Symposium on Gastric Cancer at the City of Hope in Los Angeles, CA. https://youtu.be/T0FXGUQ3bj4
When people tell you that cancer touches everybody - it really is true. Every family, every neighbor, and every friend has been affected in someway by cancer. It is a reality of life that transcends race, gender, creed, socio-economic or political contexts. This month has been a sobering reminder of how different each individual's journey with cancer … Continue reading Run Your Own Race
Two months ago I decided to start training for a Half-Ironman. Is it crazy? Sure, but it is all relative. I simply enjoy triathlon as a hobby and have always wanted to attempt a half-Ironman with or without a stomach, so why not tri? See what I did there? With Marne attempting a full marathon, it is … Continue reading “Slow is Smooth, Smooth is Fast!”
It is official. I am taking the plunge and attempting my first Half-Ironman, May 13, 2017 in Santa Rosa. 1.2 Mile Swim. 56 Mile Bike. 13.1 Mile Run. Nervous? Yes. Fear? Just for my legs which are going to have to churn out wattage for a few hours. After finishing my first olympic distance triathlon last September, … Continue reading New Horizons – Ironman 70.3
A few months ago there was a hilarious hashtag on Twitter, #wecanlandaprobeonanasteroidbutwecant... The responses were pretty amazing: "we still can't believe it's not butter", "we can't order breakfast at McDonald's after 10:30am", "we can't type more than 140 characters". It was a reminder that while human beings can do incredible things like land a probe … Continue reading The Belly of the Whale, Get It?
Well, that one was one crazy week. I get a bowel obstruction, find out I have a hernia, an extra organ that only 2% of people are born with, had a hand full of doctors at two different hospitals look at my CT scan and say, "I don't know", take an ambulance ride up back … Continue reading 6 More Inches of Story
Set backs are not something I totally prepared for during this process... At least not to the extent in which I would have to come back to the hospital. On Thursday afternoon I experienced some of the worst abdominal pain I've felt since I got my stomach removed. It felt like I had gotten stabbed … Continue reading Set Backs… and Practicing What you Preach
According to the British idiom dictionary, "Dunkirk spirit is when people pull together to get through a very difficult time."
A couple of weeks ago I got a message from Rachel who had been in contact with another CDH1 patient going in for her total gastrectomy at Stanford. While it sucks to have such a rare condition, it makes the HDGC community very unique and tight knit. This past Monday I got a chance to … Continue reading 6 months, New Friends and a Triathlon in 2 Weeks
It's official, Kate and I have restarted triathlon training and yesterday I ran the furthest distance since parting ways with my stomach. In about 40 days we will be competing in my first "stomachless" triathlon at Pacific Grove (Kate's first triathlon ever) which will make it exactly 6 months, 1 week and 1 day (6 … Continue reading Training Day and How You Can Help Me Support Gastric Cancer Research