It's week 5 of my recovery and this week we found out that my little brother Austin also came up positive for the CDH1 gene mutation. In a couple weeks we start the process of meeting with doctors and surgeons at Stanford. I think going through this process first helps, but it is strange on … Continue reading Stats can be Brutal, Orange Sauce Heals
Three Pearls
Going into surgery a month ago literally feels like another lifetime. As we prepare to resume our lives tomorrow, Kate and I did some reflection on some of the things that immediately stood out to us throughout our journey. While we could point back to many different moments, people, and circumstances that carried us through … Continue reading Three Pearls
Share this:
Week 4: New Pants and Re-Learning the Basics
Today marks the 4th week since I went into surgery and this week seems like I've turned a little bit of a corner in my recovery. I've also discovered that I need some new pants! I feel like one of those people in the weight loss commercials who put on their old pair of pants … Continue reading Week 4: New Pants and Re-Learning the Basics
Share this:
The Best of the Farewell Stomach Tour
I'm in a good mood today because I found out yesterday that my little brother Ray, tested negative for CDH1 which puts him in the clear! Now, we're just waiting on the results for my other little brother, Austin. I think his results should be in soon. With that said... Kate called the rest of … Continue reading The Best of the Farewell Stomach Tour
Share this:
Beef Aggressive
On Friday I had my two week follow-up appointment with my surgeon who said that I'm recovering really well and I even made the guy laugh! He's a little concerned about my weight loss, but more on that in a little bit. Dr. Norton did tell us that out of all the patients who had … Continue reading Beef Aggressive
Share this:
Changing the Story
A couple days ago Kate and I were going for a walk which has become a beautiful regimen in the Dang household. I have to walk at least three times a day to keep my bowels moving. When we walk, we walk incredibly slowly taking in and talking about life. The other day we were … Continue reading Changing the Story
Share this:
5 Reflections from the Hospital
I wrote most of this post while I was still laying in a hospital bed taking a bunch of naps in between so please excuse spelling errors and ranting. Hopefully I won't have to go through this again, but here are a few things I learned about my experience if there is ever a "next … Continue reading 5 Reflections from the Hospital
Share this:
Today, I’m wearing Purple
It's official. Today, I'm a cancer survivor. We got the pathology results from my stomach. Now remember, after getting negative results from all pre-screening tests, this is what they found: At least 6 different areas of the stomach that already had cancer growing and a few areas that had pre-cancer cells starting to grow . … Continue reading Today, I’m wearing Purple
Share this:
An Open Letter to My Stomach
Dear Stomach, We've been together since that crazy day in the 4th week of conception. You were developing inside of me probably before mom even knew she was pregnant! Those were some crazy times I tell you. It's almost as if we were meant to be together from the beginning. In fact, I actually believe … Continue reading An Open Letter to My Stomach
Share this:
Warning: this post will make you drool a little bit…
Well it's official! Yesterday Kate and I went in for one more meeting with our surgeon and the team of interns who will be cutting me open and straight piping my esophagus to my intestines. My surgery is officially scheduled for this coming Thursday, March 6th at 12 PM! We didn't really receive much more … Continue reading Warning: this post will make you drool a little bit…
Steve Dang 