Well, it took me a while to write this one because to be honest, the number of times I've had to go back to the hospital has been embarrassing. This past Tuesday night I spent 8 hours throwing up bile and had to get admitted once again on Wednesday the next morning. I decided I … Continue reading The Lottery Continues
Third Time’s a Charm
Well, this blog post took me a little time to write because I ended up back in the emergency room this past Tuesday (I think it was Tuesday, my memory is a little hazy). After being sent home after my second surgery I was doing fine until I started getting the same stomach cramps I … Continue reading Third Time’s a Charm
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6 months, New Friends and a Triathlon in 2 Weeks
A couple of weeks ago I got a message from Rachel who had been in contact with another CDH1 patient going in for her total gastrectomy at Stanford. While it sucks to have such a rare condition, it makes the HDGC community very unique and tight knit. This past Monday I got a chance to … Continue reading 6 months, New Friends and a Triathlon in 2 Weeks
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Three Pearls
Going into surgery a month ago literally feels like another lifetime. As we prepare to resume our lives tomorrow, Kate and I did some reflection on some of the things that immediately stood out to us throughout our journey. While we could point back to many different moments, people, and circumstances that carried us through … Continue reading Three Pearls
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Union Jack for Endoscopies and the Farewell Stomach Tour
I've been getting endoscopies every single year since I was about 12 years old, and without a stomach, this might very well have been the last endoscopy I'll ever need. As I am now apart of the research studying this cancer gene and prophylactic (preventative) gastrectomies (surgically removing the stomach), I'm now going through the … Continue reading Union Jack for Endoscopies and the Farewell Stomach Tour
Steve Dang 