I finally got around to filming and editing an update video - so in this episode I talk about fitness, diet and take you through a day without a stomach after 6 years. https://www.youtube.com/watch?v=WiGShPCFitY
Symposium on Gastric Cancer and the Beauty of Community
This past week I was invited to go to the City of Hope’s Symposium on Stomach Cancer sponsored by No Stomach for Cancer. It was here that I finally got to meet Heather Huus, Nicole McDonald and Jessica Sasser, Hannah Davis, Wagner Viana and the head hanchos for No Stomach for Cancer. It is safe … Continue reading Symposium on Gastric Cancer and the Beauty of Community
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Milestones and the Parable of the Donut
Today we hit a major milestone in my health because it has been exactly 365 days since the last time I was hospitalized. Considering all the close calls I have had in the past year, including one incident two weeks ago where it took four Norco just to get me to the point where I was comfortable. … Continue reading Milestones and the Parable of the Donut
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New Horizons – Ironman 70.3
It is official. I am taking the plunge and attempting my first Half-Ironman, May 13, 2017 in Santa Rosa. 1.2 Mile Swim. 56 Mile Bike. 13.1 Mile Run. Nervous? Yes. Fear? Just for my legs which are going to have to churn out wattage for a few hours. After finishing my first olympic distance triathlon last September, … Continue reading New Horizons – Ironman 70.3
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Rejoice, Always. Year Two.
Last Sunday as I was preparing to preach in church, Kate called me before taking the stage to wish me a Happy Gastrectoversary! My second year without a stomach had gone by slipping under the radar of my memory bank which I think captures the normalcy I have found with my new way of life. Things are not what they were, … Continue reading Rejoice, Always. Year Two.
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Lessons learned #2: Family, Matters
Let's be real: you're not the only one going through it. I know, it sounds crazy, but for me it was easy for me to forget this fact and I found myself taking out my frustrations on my family after sitting at home recovering for a few weeks. I would get really short and distant. … Continue reading Lessons learned #2: Family, Matters
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Facetime
If I have learned anything through this whole process, it's that the stomach-less community is tight. Yesterday Kate and I got to meet Marne and her husband Kyle for the first time. A couple of months ago, Marne reached out to us after finding out that her work was sending her to San Francisco for a … Continue reading Facetime
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6 More Inches of Story
Well, that one was one crazy week. I get a bowel obstruction, find out I have a hernia, an extra organ that only 2% of people are born with, had a hand full of doctors at two different hospitals look at my CT scan and say, "I don't know", take an ambulance ride up back … Continue reading 6 More Inches of Story
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It’s on… like Dunkirk Spirit
According to the British idiom dictionary, "Dunkirk spirit is when people pull together to get through a very difficult time."
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6 months, New Friends and a Triathlon in 2 Weeks
A couple of weeks ago I got a message from Rachel who had been in contact with another CDH1 patient going in for her total gastrectomy at Stanford. While it sucks to have such a rare condition, it makes the HDGC community very unique and tight knit. This past Monday I got a chance to … Continue reading 6 months, New Friends and a Triathlon in 2 Weeks
Steve Dang 