Steve CDH1, Gut Checks, Reflections

Milestones and the Parable of the Donut

Today we hit a major milestone in my health because it has been exactly 365 days since the last time I was hospitalized. Considering all the close calls I have had in the past year, including one incident two weeks ago where it took four Norco just to get me to the point where I was comfortable. … Continue reading Milestones and the Parable of the Donut

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Steve Farewell Stomach Tour Revisted, Gut Checks, Life without a Stomach, Little Graces, Reflections

2014: The best of times, the worst of times.

With M80's and fire crackers still going off in our neighborhood, Kate and I were reflecting on this past year and she asked me, "many years from now, what do you think we will remember from 2014?" In the words of the great Charles Dickens, it was the best of times and it was the worst … Continue reading 2014: The best of times, the worst of times.

Steve Gut Checks, Life without a Stomach, Reflections

Stats can be Brutal, Orange Sauce Heals

It's week 5 of my recovery and this week we found out that my little brother Austin also came up positive for the CDH1 gene mutation. In a couple weeks we start the process of meeting with doctors and surgeons at Stanford. I think going through this process first helps, but it is strange on … Continue reading Stats can be Brutal, Orange Sauce Heals

Steve Gut Checks

Gut checks, the Good News about My Health and FAQ’s

Let me start this blog post with a couple reassurances to put your hearts at ease: 1. I'm not dying. 2. I'm not leaving my position. I do, however, have some things that have been going on in my life that I wanted to catch people up on. While it seems a little impersonal, I … Continue reading Gut checks, the Good News about My Health and FAQ’s